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We report our experience of pain management in an 11-year-old boy with severe junctional epidermolysisbullosa.
2
It also has a drug for the rare genetic skin disorder epidermolysisbullosa in late development.
3
The results suggest that both children and adults with epidermolysisbullosa acquisita have variable clinical and pathologic features that may mimic other bullous diseases.
4
Epidermolysisbullosa is a group of heritable skin fragility disorders with considerable morbidity and mortality.
5
Epidermolysisbullosa is a group of hereditary blistering disorders for which there is no definitive therapy.
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About 200 people in Ireland suffer from the inherited disorder Epidermolysisbullosa, a disease where the skin continuously blisters and breaks down.